Noémie’s Hope Benefit Concert
En mémoire de leur petite Noémie, emportée par la maladie de Krabbe, la famille Lordet organise depuis 2003 l’événement Noémie’s Hope Benefit Concert. Cette année, le concert a eu lieu le 4 mai 2019 au Théâtre Baarburg (canton de Zoug) avec le soutien de l’École Internationale de Zoug et Lucerne.Read More →...
Put Your Sneakers in School 1st edition
This year for the first time since ELA Luxembourg was recognised as a public utility, “Mets Tes Baskets” made its debut in the school, with the help of the Parents’ Association. Vauban, a French school in Luxembourg, under the guidance of sports teachers Jonathan Perfetto and Maxime Gaccio, and withRead More →...
New for Leuconnect
ELA is launching, with the support of the Roche Foundation, tutorial videos to help you register and use the platform. Four videos are already available. The first video will help you register for Leuconnect, the second one will guide you to use the messaging system, the third one is dedicatedRead More →...
ELA/MLD Research Group Consortium: 3rd meeting in Paris!
The third ELA/MLD Research Group consortium was held in Paris on Friday 21 June 2019. The ELA/MLD Research Group consortium was born at the end of the symposium organised by ELA International in Luxembourg in December 2017. At the initiative of Dr. Caroline Sevin, paediatrician at the reference centre forRead More →...
ELA Ambassador Award 2019
ELA Ambassador Award 2019 : All ambassadors, all leucofighters! The 14th edition of the Ambassador Award took place at the Cité des Sciences et de l’Industrie on June 5th. Like every year, this ceremony was an opportunity to thank and reward the students representing their peers during the Put OnRead More →...
A gala match: ELA all stars against FC
On Saturday 8 June, on the occasion of its centenary celebrations, FC Progrès Niederkor organised a gala match at the Jos Haupert stadium in Niederkorn in support of ELA Luxembourg. It was a day of solidarity with a number of activities and events and brought together both young and oldandRead More →...
ELA Italia Conference
On 18 and 19 June, in Calambrone, Tuscany, the ELA Italia Onlus conference was held on the theme: Intervention strategies and improving the quality of life of patients with Leukodystrophy. The conference, organised by Prof. Roberta Battini of the IRCCS Stella Maris of Pisa, brought together doctors from the mainRead More →...
An EIB donation to ELA
Fighting leukodystrophies with patients and their families Emma Navarro, Vice-President of the EIB, the European Investment Bank, received Mr Guy Alba, founder of ELA, (European Leukodystrophy Association) and President of ELA International, at the EIB headquarters in Luxembourg on 6 May 2019. The ceremony officially marked the presentation of €26,200Read More →...
