ELA Ambassador Award 2019
ELA Ambassador Award 2019 : All ambassadors, all leucofighters! The 14th edition of the Ambassador Award took place at the Cité des Sciences et de l’Industrie on June 5th. Like every year, this ceremony was an opportunity to thank and reward the students representing their peers during the Put OnRead More →...
A gala match: ELA all stars against FC
On Saturday 8 June, on the occasion of its centenary celebrations, FC Progrès Niederkor organised a gala match at the Jos Haupert stadium in Niederkorn in support of ELA Luxembourg. It was a day of solidarity with a number of activities and events and brought together both young and oldandRead More →...
ELA Italia Conference
On 18 and 19 June, in Calambrone, Tuscany, the ELA Italia Onlus conference was held on the theme: Intervention strategies and improving the quality of life of patients with Leukodystrophy. The conference, organised by Prof. Roberta Battini of the IRCCS Stella Maris of Pisa, brought together doctors from the mainRead More →...
An EIB donation to ELA
Fighting leukodystrophies with patients and their families Emma Navarro, Vice-President of the EIB, the European Investment Bank, received Mr Guy Alba, founder of ELA, (European Leukodystrophy Association) and President of ELA International, at the EIB headquarters in Luxembourg on 6 May 2019. The ceremony officially marked the presentation of €26,200Read More →...
Major donors commit to ELA
On 22 May, Maison Baccarat hosted a prestigious dinner for friends, sponsors, partners and Crystalfoot members. Crystalfoot is a collection of crystal feet made from the footprints of great football players. The first of this collection, made free of charge by Baccarat, is that of Zinedine Zidane, ELA’s iconic sponsor.Read More →...
Crystalfoot, a club of major donors
Crystalfoot, a club of major donors united around an original project in support of the fight against leukodystrophies. On 6 May 2019, the Crystalfoot club was launched in Luxembourg by Norbert Becker, member of the ELA International Advisory Board and Guy Alba, President. Crystalfoot is a collection of crystal feetRead More →...
Leuconnect accessible to patients in several languages
Leuconnect multilingual Already accessible in French and English, the Leuconnect platform is now open in 3 new languages. With the financial support of the Roche Foundation, it is now available in Spanish, Italian and German. The members of the different ELA branches (Spain, Italy and Germany) share information with theirRead More →...
She achieved a world record in jump go-karting!
In front of several hundred people gathered for the event, the 14-year old girl, who is a karting enthusiast, hit the gas to climb up a ramp and then fell 5.5 metres further down, passing over two cars. The feat was partly achieved thanks to her father Didier, a mechanicsRead More →...
