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Leuconnect Project

On Friday 23 March 2018, Guy Alba (President of ELA International), Pascal Prin (President of ELA France) and Laurent Caredda (President of Almerys) met in Paris to sign a partnership agreement between ELA and Almerys (a health data hosting company). This contract is part of the Leuconnect project, an onlineRead More →...


ELA International brings together the world’s experts to advance leukodystrophy research.

Veuillez découvrir le contenu du 2nd Symposium ELA At an event organised by ELA International, eminent specialists from several disciplines and countries (USA, Italy, Spain, England, Germany, Holland, France,etc.) were brought together in the presence of patient representatives to enrich their mutual approaches to leukodystrophies (degenerative brain diseases that affectRead More →...


11th edition of the Wavre inter-company jogging

Great success for the opening of the new ELA jogging season. On May 4, the 11th edition of the Wavre inter-company jogging was once again held at the Golf du Château de la Bawette. Knowing the importance of this event, Mr. Le Hardy (owner of the Bawette golf course) madeRead More →...


The operation ’We are here for Romain’ continues

This operation brings together several actions carried out by the family and friends of the parents of the 3-year-old little Romain who is affected by leukodystrophy. On Saturday, April 21, the 7th edition of the Reid trail was held to support struggling IEPA (Institut Provincial d’Enseignement Agronomique de la Reid)Read More →...


ELA Switzerland Family Weekend

The 11th ELA Suisse Family Weekend took place from August 10 to 12 at the Hotel Cailler in Charmey (canton of Friborg). After taking possession of their room, the families found themselves in a good mood and conviviality to share the evening meal. A meeting dedicated to parents was heldRead More →...


3rd edition “All Schuss for ELA”

It was with a new idea, designed especially for families, that the third edition of ’Tout Schuss pour ELA’ took place on March 3 in the resort of Morgins (canton of Valais). A small, timed giant (petit géant chronométré), a toboggan run, and blind skiing,, are some of the eventsRead More →...


Rally for smile

Providing smiles to children with a rare disease through motorsport is the goal of Rally for Smile. For its fourth edition, the initiator of the event, Pierre-André Terrettaz and his committee have chosen to support ELA Switzerland and provide families with a unique and extraordinary day. On August 25, 2018,Read More →...


Always more numerous, always more united!

During the  2017/2018 edition, the campaign ’Put on your sneakers and beat the disease’ at school brought together 2,947 schools,r and more than 511,000 students. The objective of this campaign, supported each year by the Ministry of National Education, is to raise awareness in schools about leukodystrophies and then toRead More →...


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