the families concerned by leukodystrophy
Be suffering from leukodystrophy, an orphan genetic disease, serious, progressive, debilitating and particularly destructive, upsets his own life and that of his family.
Indeed, families should move closer to agencies and services that previously could they be completely unknown.
The association does not pretend to answer all questions but wants families to bring them the information they need to understand the best of all their rights and their obligations.
Our teams are available to families for support and respond better to their expectations and their personal situation.