Zidane, ELA coach
“We’re a good team, we’re a great team. And I have faith in you. That’s how we can beat Leucodystrophies and help sick children. Come on, let’s go!” Zinedine Zidane
Research, one of ELA’s fundamental missions
Today, thanks to research funded by ELA, over thirty leukodystrophies have been identified, testifying to the organization’s unwavering commitment to mobilizing the scientific community to advance research into these rare diseases.
Research key figures
30+
Years of commitment
7
international branches
586
programs supported since 1992
€ 50.5 M
sustained investment since 1992
1st
funder of leukodystrophies medical research
event
Geneva
Watches for ELA
On 11 November 2024, the first ‘Watches for ELA’ auction was held to raise funds for the fight against leukodystrophy.
12 unique watches were sold for CHF 843,000,
which will be used to continue ELA International’s support for medical research,
as well as support for families affected by the disease.
Pooling forces for faster progress
Welcome to ELA International, created in 2015 to federate the action of all ELA structures and develop Research worldwide. ELA International is present in 7 countries: Belgium, France, Germany, Italy, Luxembourg, Spain and Switzerland, and brings together researchers from all over the world.
Antenna news
All branch news Actus de la recherche
Latest news
“Watches for ELA”, rare watches sale to benefit ELA International
Like 11 European countries, the United States approve Libmeldy
International Rare Disease Day: the policy of the 1st child who saves the 2nd is intolerable
Scientific Committee of ELA International: a face to face much awaited
Wear your trainers at school
Sign the petition to save children from being denied treatment for commercial reasons
INTERNATIONAL
Libmeldy reimbursement
in Europe
Germany, Belgium, Denmark,
Finland, Italy, Ireland, Iceland,
Norway, Netherlands, Sweden, United Kingdom.
Read more
Our research projects and clinical studies