Today, thanks to research funded by ELA, over thirty leukodystrophies have been identified, testifying to the organization’s unwavering commitment to mobilizing the scientific community to advance research into these rare diseases.
Years of commitment
international branches
programs supported since 1992
sustained investment since 1992
funder of leukodystrophies medical research
The second edition of “Watches for ELA”
to benefit the fight against leukodystrophies
will take place on November 9, 2026.
This unique watch auction will help continue
ELA International’s support for medical research,
as well as its support for families affected by the disease.
“We’re a good team, we’re a great team. And I have faith in you. That’s how we can beat Leucodystrophies and help sick children. Come on, let’s go!” Zinedine Zidane
Welcome to ELA International, created in 2015 to federate the action of all ELA structures and develop Research worldwide. ELA International is present in 7 countries: Belgium, France, Germany, Italy, Luxembourg, Spain and Switzerland, and brings together researchers from all over the world.
Libmeldy (atidarsagene autotemcel),
indicated for metachromatic leukodystrophy
(MLD), is eligible for regular reimbursement
in the following countries:
Germany, Belgium, Denmark,
Finland, Italy, Ireland, Iceland,
Norway, Netherlands, Sweden, United Kingdom.
Our research projects and clinical studies
