From 11 to 13 October, many members of the ELA family gathered in Hann. Münden to interact with doctors and gain new knowledge. The 2019 meeting brought together the largest number of members since the founding of the Bundesverein Leukodystrophie Association and its successor, ELA Deutschland eV. Thank you toRead More →

The families from ELA Germany met in June for 3 days in the middle of the forest in Lauterbach, 80 km from Frankfurt. The 60 participants had an unforgettable experience in the theme park “Life Camp Lauterbach”. Parents and children could discover nature in all its forms in the forestRead More →

From 22 to 25 September, ELA families met at Center Parcs at the Vossemeren estate in Lommel for a relaxing weekend. Once settled in their cottages, they were able to put their daily routine behind them for the weekend, for moments of rest, well-being, joy and surprises. This year, ourRead More →