Scientific Committee
The role and procedure of ELA International Scientific Committee
A new scientific committee for ELA
The scientific committee of ELA International has 15 members, experts in leukodystrophies. It is chaired by Pr. Florian Eichler, Medical Neurologist Director of the Department of Leukodystrophies at Massachusetts General Hospital for Children – Boston, USA.
Nicole Wolf, nuropediatrician doctor at the VU University Medical Center of Amsterdam – Amsterdam, The Netherlands, has been appointed Vice President.
The scientific council is renewed. Today Magali Pettazzoni joins the committee, her expertise focuses on hereditary pathologies of metabolism and red blood cell, at CHU Lyon, France, Alessandra Biffi, Head of the Paediatric Haematology Department at the University Hospital of Padua, Italie and Annette Bley, Head of Leukodystrophies Pediatric Clinic at the Hamburg University Medical Center, Hamburg, Germany.
The scientific committee continues its mission to support ELA International in its research activities by providing its scientific expertise for the evaluation of projects related to the annual call for proposals.
Florian EICHLER | President | Pediatric and Adult Neurology | |
![]() | Nicole WOLF | Vice-presidente MD, PhD | Pediatric Neurology, Neurosciences |
Elena AMBROSINI | PhD | Neurobiology | |
![]() | Enrico BERTINI | MD | Professor of Pediatric Neurology |
![]() | Annette BLEY | MD | Head of Leukodystrophies Pediatric Clinic |
![]() | Alessandra BIFFI | MLD, Gene Therapy | Professor of Pediatrics |
Raul ESTEVEZ | PhD | Professor of Physiology | |
Samuel GROESCHEL | MD, PhD | Pediatric Neurology | |
David HUNT | MD, PhD | Molecular Biology and Inflammatory Diseases | |
Stephan KEMP | PhD | Academic Medical Center Principal Investigator | |
Wolfgang KOEHLER | MD | Clinical neurology | |
Yann NADJAR | MD, PhD Neurologist | Neuro-Genetics and Metabolism | |
![]() | Magali PETTAZZONI | PharmD | Department of Biochemistry and Molecular Biology Lyon, Paris |
David ROWITCH | MD, PhD, ScD | Pediatric Neurology | |
Adeline VANDERVER | MD | Neurology Program Director of the Leukodystrophy Center of Excellence |
Ukraine – ELA Scientific committee statement
“The European Leukodystrophy Association international scientific advisory board wishes to express its concern and sympathy for people and families affected by leukodystrophy and the war in Ukraine. We understand the great difficulty of taking care of children with rare disease, especially without access to proper hospital care or medicines.
Our board members will endeavour to provide direct medical support to refugees as well as hospitals and healthcare providers in the region that can benefit from specialist medical advice on care of leukodystrophy patients.
This is a time of empathy and unity for all people and families affected by leukodystrophy”