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The operation ’We are here for Romain’ continues

This operation brings together several actions carried out by the family and friends of the parents of the 3-year-old little Romain who is affected by leukodystrophy. On Saturday, April 21, the 7th edition of the Reid trail was held to support struggling IEPA (Institut Provincial d’Enseignement Agronomique de la Reid)Read More → ...

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ELA Switzerland Family Weekend

The 11th ELA Suisse Family Weekend took place from August 10 to 12 at the Hotel Cailler in Charmey (canton of Friborg). After taking possession of their room, the families found themselves in a good mood and conviviality to share the evening meal. A meeting dedicated to parents was heldRead More → ...

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3rd edition “All Schuss for ELA”

It was with a new idea, designed especially for families, that the third edition of ’Tout Schuss pour ELA’ took place on March 3 in the resort of Morgins (canton of Valais). A small, timed giant (petit géant chronométré), a toboggan run, and blind skiing,, are some of the eventsRead More → ...

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Rally for smile

Providing smiles to children with a rare disease through motorsport is the goal of Rally for Smile. For its fourth edition, the initiator of the event, Pierre-André Terrettaz and his committee have chosen to support ELA Switzerland and provide families with a unique and extraordinary day. On August 25, 2018,Read More → ...

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Always more numerous, always more united!

During the  2017/2018 edition, the campaign ’Put on your sneakers and beat the disease’ at school brought together 2,947 schools,r and more than 511,000 students. The objective of this campaign, supported each year by the Ministry of National Education, is to raise awareness in schools about leukodystrophies and then toRead More → ...

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ELA Ambassador Award 2018

The 13th edition of the Ambassador Prize took place at the Cité des Sciences et de l’Industrie in Paris on June 6. This ceremony made it possible to thank and reward the students most strongly involved during the campaign ’Put on your sneakers and beat the disease’ organised in theirRead More → ...

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‘Put on your sneakers at work’ : 3rd edition

On Friday June 15, 2018, the 3rd edition of the Mets Tes Baskets dans l’Entreprise operation took place in Luxembourg. This 3rd edition saw a significant mobilisation both at the level of sponsors and companies. 25 companies have been partners: • 42 Consulting • Akt One • ALD Automotive •Read More → ...

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Crystalfoot, a limited numbered series of 100 feet of crystal

The launch of Crystalfoot took place on June 12 at Baccarat in Paris where Zinedine Zidane unveiled the exceptional work of art in the presence of numerous guests, loyal sponsors and the international press. A loyal ambassador and involved in the fight for ELA for 18 years, Zinédine Zidane himselfRead More → ...

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