ELA is launching, with the support of the Roche Foundation, tutorial videos to help you register and use the platform. Four videos are already available.
The first video will help you register for Leuconnect, the second one will guide you to use the messaging system, the third one is dedicated to entering your medical file and the last one to apply for a clinical study initiated on the platform. They are accessible both on the platform and on the association’s websites.
These videos feature a fictional character who will mimic your journey of using Leuconnect, making it easy for you to do so from the comfort of your home.
The stakes are high for research into leukodystrophies and the improvement and optimisation of the patient’s care pathway.