Virtual SYMPOSIUM ELA International
« CLINICAL TRIALS AND ETHICS »
Saturday November 27th, 2021
ELA international organized an innovative symposium aiming to reflect how patients and their families can be involved in the various research projects that concern them, and to define the ethical rules that will guide ELA International in its partnerships with public or private laboratories.
A voice was given to patients, families and caregivers, representative associations, and to health professionals, involved in clinical studies.
This symposium international was translated into 5 languages (English, French, German, Italian, and Spanish).
This international symposium placed “the patient” at the heart of current research topics and will strengthen collaboration between doctors-researchers and patients concerned by leukodystrophy.
On the program:
- Gene Therapy for Metachromatic leukodystrophy and therapeutic trials in Adrenomyeloneuropathy: an ethical update
- The results and valorisation of the studies: the benefits for patients
VIDEO OF SYMPOSIUM
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