Our organization

ELA International is a non-profit European Economic Interest Grouping. Its purpose, both in the Grand Duchy of Luxembourg and abroad, is to facilitate or develop the activity of its members, in particular in the areas of:

• information and support for families affected by leukodystrophy
• awareness of the public and the medical community
• funding for medical research on leukodystrophies and myelin repair
• the international development of ELA International and its members

ELA International may undertake all steps, measures and initiatives relating to the goals defined above, in particular, by creating a framework and a common heritage for the members, by organising, coordinating and promoting events with an international vocation, by initiating and facilitating medico-social projects and research and development projects on leukodystrophies and myelin repair within the framework of international partnerships, by developing and deploying a common capacity for collecting donations. In this regard, ELA International has the authority and power to open branches and offices worldwide.

Members and missions

Founding Members

organize the General Assembly to set the directions of research and decide on the financing of projects.

Gaël de Miomandre

President of ELA Belgium

Jean-Paul Friedrich

President of ELA Luxembourg

Myriam Lienhard

President of ELA Switzerland

Crystelle Cottart

President of ELA France

ELA International’s staff

Guy Alba

Founder of ELA in 1992 & President

Jean-Luc Corti

Secretary General

Myriam Lienhard

Treasurer

Operational team
Operational Research team

launches calls for projects, receives and evaluates research proposals.

Audrey Boyer
Audrey Boyer

Head of Research Department

Laure Philippe
Laure Philippe

Project Manager

Jean-Claude Satta

Personal Relations Manager – International Development Officer

Antoine Prin

Events Project Manager

Scientific Committee
Learn more

evaluates research projects and advises on the funding of each project.

Florian Eichler

President MD

Nicole Wolf

Vice-Presidente MD, PhD

+ 13

Expert members

Ethics committee
Learn more

gives informed advice to the Scientific Committee.

Grégoire Moutel

Director of the Regional Ethical Reflection Area – France

+4

Representative members of ELA Families

+6

International clinical experts from different backgrounds

Advisory board

These people support ELA International to promote and highlight its activities.

Norbert Becker

Founding President of Atoz

Jacques Bungert

General Director of L.E.M. Projects

Noël Forgeard

Former Chairman of the Airbus Group

François-Henri Pinault

Chairman and CEO of Kering

Franck Riboud

Former Chairman of Danone

Zinédine Zidane

Honorary Member of ELA