Our organization
ELA International is a non-profit European Economic Interest Grouping. Its purpose, both in the Grand Duchy of Luxembourg and abroad, is to facilitate or develop the activity of its members, in particular in the areas of:
• information and support for families affected by leukodystrophy
• awareness of the public and the medical community
• funding for medical research on leukodystrophies and myelin repair
• the international development of ELA International and its members
ELA International may undertake all steps, measures and initiatives relating to the goals defined above, in particular, by creating a framework and a common heritage for the members, by organising, coordinating and promoting events with an international vocation, by initiating and facilitating medico-social projects and research and development projects on leukodystrophies and myelin repair within the framework of international partnerships, by developing and deploying a common capacity for collecting donations. In this regard, ELA International has the authority and power to open branches and offices worldwide.
Members and missions
Founding Members
organize the General Assembly to set the directions of research and decide on the financing of projects.

Gaël de Miomandre
President of ELA Belgium

Jean-Paul Friedrich
President of ELA Luxembourg

Myriam Lienhard
President of ELA Switzerland

Crystelle Cottart
President of ELA France
ELA International’s staff

Guy Alba
Founder of ELA in 1992 & President

Jean-Luc Corti
Secretary General

Myriam Lienhard
Treasurer
Operational team
Operational Research teamlaunches calls for projects, receives and evaluates research proposals.

Audrey Boyer
Head of Research Department

Laure Philippe
Project Manager

Jean-Claude Satta
Personal Relations Manager – International Development Officer

Antoine Prin
Events Project Manager
Scientific Committee
Learn moreevaluates research projects and advises on the funding of each project.

Florian Eichler
President MD

Nicole Wolf
Vice-Presidente MD, PhD

+ 13
Expert members
Ethics committee
Learn moregives informed advice to the Scientific Committee.

Grégoire Moutel
Director of the Regional Ethical Reflection Area – France

+4
Representative members of ELA Families

+6
International clinical experts from different backgrounds
Advisory board
These people support ELA International to promote and highlight its activities.

Norbert Becker
Founding President of Atoz

Jacques Bungert
General Director of L.E.M. Projects

Noël Forgeard
Former Chairman of the Airbus Group

François-Henri Pinault
Chairman and CEO of Kering

Franck Riboud
Former Chairman of Danone

Zinédine Zidane
Honorary Member of ELA