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What we're all about

ELA International is an initiative launched in 2015 with the aim of coordinating the efforts of the various ELA structures and promoting the development of research in the field of leukodystrophies.

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ELA's fight against leukodystrophies is based on 4 pillars.

Our missions

Research

Together with the scientific community, we are working to understand rare diseases. Explore the latest advances in clinical projects and studies funded by ELA.

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  • The major stages
  • Call for proposals
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  • Patient recruitment for ongoing clinical trials
  • Research news and results
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Leuconnect is a platform for the community of patients and their families affected by leukodystrophy.

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Leukodystrophies

This group of neurodegenerative diseases covers a wide variety of forms. Over thirty leukodystrophies have been identified.

  • Understand everything
  • Index of leukodystrophies
  • Expert centers

List of centers that play a crucial role in the management of these conditions

Expert centers

The role of the branches

It is your contributions to the ELA branches that help support leukodystrophy research, accelerating medical advances and offering hope to affected families.

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  • Crystalfoot

November 11, 2024, 11 unique watches were sold to benefit ELA International.

Discover Watches for ELA
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  • Hôpital Pierre Wertheimer – Hospices Civils de Lyon
France6 August 2024

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Branch news

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Spain 10 April 2025

Annual ELA Spain family gathering

Germany 10 April 2025

2024 ELA Germany Family/Researchers Conference

International 13 November 2024

Zinédine Zidane launches the first “Watches for ELA” sale

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ELA International

In 2015, ELA France, ELA Switzerland, ELA Luxembourg and ELA Belgium created ELA International-GEIE with the aim of coordinating the efforts of the various ELA structures in Europe and promoting the development of research in the field of leukodystrophies.

  • ELA Germany
  • ELA Belgium
  • ELA Spain
  • ELA France
  • ELA Italy
  • ELA Luxemburg
  • ELA Switzerland

Our actions are born from your donations

It is thanks to your support that we can advance our fight against leukodystrophies.
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