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What we're all about

ELA International is an initiative launched in 2015 with the aim of coordinating the efforts of the various ELA structures and promoting the development of research in the field of leukodystrophies.

  • ELA Hope Story
  • Our organization
  • Our missions
  • Testimonials
  • Branch news
  • Annual activity and financial report

ELA's fight against leukodystrophies is based on 4 pillars.

Our missions

Research

Together with the scientific community, we are working to understand rare diseases. Explore the latest advances in clinical projects and studies funded by ELA.

  • Research team
  • Scientific Committee
  • Ethics committee
  • The major stages
  • Call for proposals
  • Leuconnect
  • Clinical trials
  • Research news and results
  • European Joint Programme on Rare Diseases

Leuconnect is a platform for the community of patients and their families affected by leukodystrophy.

Discover Leuconnect

Leukodystrophies

This group of neurodegenerative diseases covers a wide variety of forms. Over thirty leukodystrophies have been identified.

  • Understand everything
  • Index of leukodystrophies
  • Expert centers

List of centers that play a crucial role in the management of these conditions

Expert centers

The role of the branches

It is your contributions to the ELA branches that help support leukodystrophy research, accelerating medical advances and offering hope to affected families.

  • How to help us
  • Crystalfoot

November 11, 2024, 11 unique watches were sold to benefit ELA International.

Discover Watches for ELA
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  • Research
    • Research team
    • Scientific Committee
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    • Leuconnect
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  • Leukodystrophies
    • Understand everything
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Archives: Centres d'experts

Post Type Description

  • UC Davis Health – Sacramento
United States7 August 2024

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France 18 September 2025

141 families at Center Parcs for the 32nd ELA France gathering

France 7 July 2025

Looking back on 30 years of commitment to ELA

Spain 10 April 2025

Annual ELA Spain family gathering

  • John R. Oishei Children’s Hospital – Buffalo
United States6 August 2024

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France 18 September 2025

141 families at Center Parcs for the 32nd ELA France gathering

France 7 July 2025

Looking back on 30 years of commitment to ELA

Spain 10 April 2025

Annual ELA Spain family gathering

  • Nationwide Children’s Hospital Leukodystrophy Clinic – Columbus
United States6 August 2024

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France 18 September 2025

141 families at Center Parcs for the 32nd ELA France gathering

France 7 July 2025

Looking back on 30 years of commitment to ELA

Spain 10 April 2025

Annual ELA Spain family gathering

  • Columbia University Leukodystrophy Center – New York

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France 18 September 2025

141 families at Center Parcs for the 32nd ELA France gathering

France 7 July 2025

Looking back on 30 years of commitment to ELA

Spain 10 April 2025

Annual ELA Spain family gathering

  • CHRISTUS Children’s – Irving
United States6 August 2024

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France 18 September 2025

141 families at Center Parcs for the 32nd ELA France gathering

France 7 July 2025

Looking back on 30 years of commitment to ELA

Spain 10 April 2025

Annual ELA Spain family gathering

  • Texas Children’s Hospital – Houston
United States6 August 2024

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France 18 September 2025

141 families at Center Parcs for the 32nd ELA France gathering

France 7 July 2025

Looking back on 30 years of commitment to ELA

Spain 10 April 2025

Annual ELA Spain family gathering

  • Monroe Carell Jr. Children’s Hospital at Vanderbilt
United States6 August 2024

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France 18 September 2025

141 families at Center Parcs for the 32nd ELA France gathering

France 7 July 2025

Looking back on 30 years of commitment to ELA

Spain 10 April 2025

Annual ELA Spain family gathering

  • Massachusetts General Hospital – Boston
United States6 August 2024

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France 18 September 2025

141 families at Center Parcs for the 32nd ELA France gathering

France 7 July 2025

Looking back on 30 years of commitment to ELA

Spain 10 April 2025

Annual ELA Spain family gathering

  • Children’s National Health System – Washington DC
United States6 August 2024

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France 18 September 2025

141 families at Center Parcs for the 32nd ELA France gathering

France 7 July 2025

Looking back on 30 years of commitment to ELA

Spain 10 April 2025

Annual ELA Spain family gathering

  • Golisano Children’s Hospital – Rochester
United States6 August 2024

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France 18 September 2025

141 families at Center Parcs for the 32nd ELA France gathering

France 7 July 2025

Looking back on 30 years of commitment to ELA

Spain 10 April 2025

Annual ELA Spain family gathering

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    ELA International

    In 2015, ELA France, ELA Switzerland, ELA Luxembourg and ELA Belgium created ELA International-GEIE with the aim of coordinating the efforts of the various ELA structures in Europe and promoting the development of research in the field of leukodystrophies.

    • ELA Germany
    • ELA Belgium
    • ELA Spain
    • ELA France
    • ELA Italy
    • ELA Luxemburg
    • ELA Switzerland

    Our actions are born from your donations

    It is thanks to your support that we can advance our fight against leukodystrophies.
    How to help us

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