ELA International is an initiative launched in 2015 with the aim of coordinating the efforts of the various ELA structures and promoting the development of research in the field of leukodystrophies.
Together with the scientific community, we are working to understand rare diseases. Explore the latest advances in clinical projects and studies funded by ELA.
Leuconnect is a platform for the community of patients and their families affected by leukodystrophy.
Discover LeuconnectThis group of neurodegenerative diseases covers a wide variety of forms. Over thirty leukodystrophies have been identified.
It is your contributions to the ELA branches that help support leukodystrophy research, accelerating medical advances and offering hope to affected families.
November 11, 2024, 11 unique watches were sold to benefit ELA International.
Discover Watches for ELA“For over 30 years, he has fought to make the voices of families confronted with rare, irreversible and devastating diseases heard.
He has federated, built and mobilized to transform powerlessness into action, suffering into combat”.
Guy Alba talks about the creation of ELA and his commitment since 1992.
