ELA International is an initiative launched in 2015 with the aim of coordinating the efforts of the various ELA structures and promoting the development of research in the field of leukodystrophies.
Together with the scientific community, we are working to understand rare diseases. Explore the latest advances in clinical projects and studies funded by ELA.
Leuconnect is a platform for the community of patients and their families affected by leukodystrophy.
Discover LeuconnectThis group of neurodegenerative diseases covers a wide variety of forms. Over thirty leukodystrophies have been identified.
It is your contributions to the ELA branches that help support leukodystrophy research, accelerating medical advances and offering hope to affected families.
November 11, 2024, 11 unique watches were sold to benefit ELA International.
Discover Watches for ELAELA international repeats the ELA Families/Researchers meeting virtually, an event open to the international community of patients affected by leukodystrophy.
A simultaneous translation in 5 languages (German, English, Spanish, French, Italian) allowed everyone to follow the presentations live.
ELA international is giving a voice to the parents of sick children who are speaking out against the planned discontinuation of a treatment currently under trial.
