{"id":20035,"date":"2024-05-20T14:51:05","date_gmt":"2024-05-20T12:51:05","guid":{"rendered":"https:\/\/ela-international.preprod.melisagency.fr\/?page_id=20035"},"modified":"2026-10-20T16:58:45","modified_gmt":"2026-10-20T14:58:45","slug":"our-organization","status":"publish","type":"page","link":"https:\/\/elainternational.eu\/en\/ela-international\/our-organization\/","title":{"rendered":"Our organization"},"content":{"rendered":"\n\n
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Our organization<\/strong><\/h2>\n <\/div>\n
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ELA International is a non-profit European Economic Interest Grouping. Its purpose, both in the Grand Duchy of Luxembourg and abroad, is to facilitate or develop the activity of its members, in particular in the areas of:<\/p>\n

\u2022 information and support for families affected by leukodystrophy
\n\u2022 awareness of the public and the medical community
\n\u2022 funding for medical research on leukodystrophies and myelin repair
\n\u2022\u00a0the international development of ELA International and its members<\/p>\n

ELA International may undertake all steps, measures and initiatives relating to the goals defined above, in particular, by creating a framework and a common heritage for the members, by organising, coordinating and promoting events with an international vocation, by initiating and facilitating medico-social projects and research and development projects on leukodystrophies and myelin repair within the framework of international partnerships, by developing and deploying a common capacity for collecting donations. In this regard, ELA International has the authority and power to open branches and offices worldwide.<\/p>\n <\/div>\n <\/div>\n<\/section>\n\n\n\n

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Members and missions<\/strong><\/h3>\n <\/div>\n <\/div>\n<\/section>\n\n\n
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Founding Members<\/h5>\n <\/header>\n

organize the General Assembly to set the directions of research and decide on the financing of projects.<\/p>\n <\/div>\n

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\n \n \"\"\n <\/picture>\n
Ga\u00ebl de Miomandre<\/h5>\n

President of ELA Belgium<\/p>\n <\/div>\n

\n \n \"\"\n <\/picture>\n
Jean-Paul Friedrich<\/h5>\n

President of ELA Luxembourg<\/p>\n <\/div>\n

\n \n \"\"\n <\/picture>\n
Myriam Lienhard<\/h5>\n

President of ELA Switzerland<\/p>\n <\/div>\n

\n \n \"\"\n <\/picture>\n
Crystelle Cottart<\/h5>\n

President of ELA France<\/p>\n <\/div>\n <\/section>\n <\/div>\n<\/section>\n\n\n

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ELA International\u2019s staff<\/h5>\n <\/header>\n

<\/p>\n <\/div>\n

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\n \n \"\"\n <\/picture>\n
Guy Alba<\/h5>\n

Founder of ELA in 1992 & President<\/p>\n <\/div>\n

\n \n \"\"\n <\/picture>\n
Jean-Luc Corti<\/h5>\n

Secretary General<\/p>\n <\/div>\n

\n \n \"\"\n <\/picture>\n
Myriam Lienhard<\/h5>\n

Treasurer<\/p>\n <\/div>\n <\/section>\n <\/div>\n<\/section>\n\n\n

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Operational team<\/h5>\n \n \n <\/svg> Operational Research team<\/a>\n <\/header>\n

launches calls for projects, receives and evaluates research proposals.<\/p>\n <\/div>\n

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\n \n \"Audrey\n <\/picture>\n
Audrey Boyer<\/h5>\n

Head of Research Department<\/p>\n <\/div>\n

\n \n \"\"\n <\/picture>\n
Jean-Claude Satta<\/h5>\n

Personal Relations Manager – International Development Officer<\/p>\n <\/div>\n

\n \n \"\"\n <\/picture>\n
Antoine Prin<\/h5>\n

Events Project Manager<\/p>\n <\/div>\n

\n \n \"\"\n <\/picture>\n
Florence Schlageter<\/h5>\n

International Development Manager<\/p>\n <\/div>\n <\/section>\n <\/div>\n<\/section>\n\n\n

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Scientific Committee<\/h5>\n \n \n <\/svg> Learn more<\/a>\n <\/header>\n

evaluates research projects and advises on the funding of each project.<\/p>\n <\/div>\n

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Florian Eichler<\/h5>\n

President MD<\/p>\n <\/div>\n

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Nicole Wolf<\/h5>\n

Vice-Presidente MD, PhD<\/p>\n <\/div>\n

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+ 13<\/h5>\n

Expert members<\/p>\n <\/div>\n <\/section>\n <\/div>\n<\/section>\n\n\n

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Ethics committee <\/h5>\n \n \n <\/svg> Learn more<\/a>\n <\/header>\n

gives informed advice to the Scientific Committee. <\/p>\n <\/div>\n

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Gr\u00e9goire Moutel<\/h5>\n

Director of the Regional Ethical Reflection Area – France<\/p>\n <\/div>\n

\n \n \"\"\n <\/picture>\n
+4<\/h5>\n

Representative members of ELA Families<\/p>\n <\/div>\n

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+6<\/h5>\n

International clinical experts from different backgrounds<\/p>\n <\/div>\n <\/section>\n <\/div>\n<\/section>\n\n\n

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Advisory board<\/h5>\n <\/header>\n

These people support ELA International to promote and highlight its activities.<\/p>\n <\/div>\n

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\n \n \"\"\n <\/picture>\n
Norbert Becker<\/h5>\n

Founding President of Atoz <\/p>\n <\/div>\n

\n \n \"\"\n <\/picture>\n
Jacques Bungert<\/h5>\n

General Director of L.E.M. Projects<\/p>\n <\/div>\n

\n \n \"\"\n <\/picture>\n
No\u00ebl Forgeard<\/h5>\n

Former Chairman of the Airbus Group<\/p>\n <\/div>\n

\n \n \"\"\n <\/picture>\n
Fran\u00e7ois-Henri Pinault<\/h5>\n

Managing Partner – Artemis Group \u2013 Financi\u00e8re Pinault<\/p>\n <\/div>\n

\n \n \"\"\n <\/picture>\n
Franck Riboud<\/h5>\n

Former Chairman of Danone<\/p>\n <\/div>\n

\n \n \"\"\n <\/picture>\n
Zin\u00e9dine Zidane<\/h5>\n

Honorary Member of ELA<\/p>\n <\/div>\n <\/section>\n <\/div>\n<\/section>\n\n\n\n