{"id":19924,"date":"2024-05-15T01:05:04","date_gmt":"2024-05-14T23:05:04","guid":{"rendered":"https:\/\/ela-international.preprod.melisagency.fr\/index.php\/ela-international\/notre-histoire\/"},"modified":"2024-08-08T12:17:41","modified_gmt":"2024-08-08T10:17:41","slug":"ela-hope-story","status":"publish","type":"page","link":"https:\/\/elainternational.eu\/en\/ela-international\/ela-hope-story\/","title":{"rendered":"ELA Hope Story"},"content":{"rendered":"\n\n
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ELA Hope Story<\/strong><\/h2>\n <\/div>\n <\/div>\n<\/section>\n\n\n\n
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ELA,<\/strong> a family association<\/h3>\n <\/div>\n
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1992: this is the date of creation of ELA, an association of families ready to move mountains, ready to do anything to defeat leukodystrophies!\u00a0 A first meeting takes place in a hospital corridor with Guy Alba and Pascal Prin, two fathers of children with leukodystrophy. With Cathy Schorderet and Raymond Cordary, led by the same will to fight against the disease that affects their children, they founded the European Leukodystrophies Association.<\/p>\n

Its constitutive general assembly was held on 15 February 1992 at the headquarters of the Republican Lorrain in Metz. The board of directors is then composed of 23 members all parents concerned by leukodystrophies. The governance bias will remain the same for 30 years: an association of families for families, with clear objectives to fund medical research, support families, raise public awareness and develop its action at the international level.
\nIn 2022, ELA has 900 members and many partners and friends!<\/p>\n <\/div>\n <\/div>\n<\/section>\n\n\n

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\n Creation of ELA <\/h3>\n
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