{"id":23697,"date":"2026-03-17T12:04:54","date_gmt":"2026-03-17T11:04:54","guid":{"rendered":"https:\/\/elainternational.eu\/?post_type=news&#038;p=23697"},"modified":"2026-09-10T15:10:33","modified_gmt":"2026-09-10T13:10:33","slug":"ela-meets-queen-letizia","status":"publish","type":"news","link":"https:\/\/elainternational.eu\/en\/actualites\/ela-meets-queen-letizia\/","title":{"rendered":"ELA meets Queen Letizia of Spain"},"content":{"rendered":"\n\n<div class=\"block-wrapper\">\n    <div class=\"container-content\">\n        <p>On 11 March, ELA had the honour of being received by Queen Letizia of Spain to mark the 25<sup>th<\/sup> anniversary of ELA Spain.<\/p>\n<p>During an emotional meeting, the Queen spoke with Guy Alba (President of ELA International), Carmen Sever (President of ELA Spain) and families, who shared their stories of the immense daily challenges they face due to illness and disability.<\/p>\n<p>It was also an opportunity to discuss the introduction of neonatal screening for leukodystrophies, so that effective treatments can be offered before the first symptoms appear.<\/p>\n<p>Finally, scientists Aurora Pujol, Sergio Aguilera and Fernando de Castro, who specialise in leukodystrophies, provided an update on advances in medical research and on the experimental treatments currently underway.<\/p>\n<p>We sincerely thank Her Majesty for her warm welcome and kindness during this meeting.<\/p>\n\n            <\/div>\n<\/div>\n\n\n\n\n<div class=\"container-content-small\">\n    <div class=\"galerie mt-4 mb-4\">\n\n        <div class=\"grid grid-3\">\n\n                        <div class=\"grid-item\">\n                <a href=\"https:\/\/elainternational.eu\/wp-content\/uploads\/2026\/03\/Diaporama-rencontre-ELA-Espagne-photo-groupe.jpg\" class=\"galerie-item\" data-fancybox=\"gallery-236902369623688\" data-caption=\"Group photo with Her Majesty, Carmen Sever, Guy Alba, the families and the researchers \u00a9 Casa de S.M. el Rey\">\n\n                        <img decoding=\"async\" src=\"https:\/\/elainternational.eu\/wp-content\/uploads\/2026\/03\/Diaporama-rencontre-ELA-Espagne-photo-groupe.jpg\" alt=\"Group photo with Her Majesty, Carmen Sever, Guy Alba, the families and the researchers \u00a9 Casa de S.M. el Rey\">\n\n                <\/a>\n            <\/div>\n                        <div class=\"grid-item\">\n                <a href=\"https:\/\/elainternational.eu\/wp-content\/uploads\/2026\/03\/Diaporama-rencontre-ELA-Espagne-famille-1.jpg\" class=\"galerie-item\" data-fancybox=\"gallery-236902369623688\" data-caption=\"Queen Letizia meets with families \u00a9 Casa de S.M. el Rey\">\n\n                        <img decoding=\"async\" src=\"https:\/\/elainternational.eu\/wp-content\/uploads\/2026\/03\/Diaporama-rencontre-ELA-Espagne-famille-1.jpg\" alt=\"Queen Letizia meets with families \u00a9 Casa de S.M. el Rey\">\n\n                <\/a>\n            <\/div>\n                        <div class=\"grid-item\">\n                <a href=\"https:\/\/elainternational.eu\/wp-content\/uploads\/2026\/03\/Diaporama-rencontre-ELA-Espagne-groupe-parole.jpg\" class=\"galerie-item\" data-fancybox=\"gallery-236902369623688\" data-caption=\"Informative discussions on the fight against leukodystrophies \u00a9 Casa de S.M. el Rey\">\n\n                        <img decoding=\"async\" src=\"https:\/\/elainternational.eu\/wp-content\/uploads\/2026\/03\/Diaporama-rencontre-ELA-Espagne-groupe-parole.jpg\" alt=\"Informative discussions on the fight against leukodystrophies \u00a9 Casa de S.M. el Rey\">\n\n                <\/a>\n            <\/div>\n            \n        <\/div>\n\n\n    <\/div>\n<\/div>\n\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":6,"featured_media":23702,"parent":0,"template":"","news_categories":[100],"class_list":["post-23697","news","type-news","status-publish","has-post-thumbnail","hentry","news_categories-spain"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.4 - 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