{"id":22028,"date":"2020-02-20T10:52:09","date_gmt":"2020-02-20T09:52:09","guid":{"rendered":"https:\/\/ela-international.preprod.melisagency.fr\/?post_type=news&p=22028"},"modified":"2024-08-16T15:57:26","modified_gmt":"2024-08-16T13:57:26","slug":"an-eib-donation-to-ela","status":"publish","type":"news","link":"https:\/\/elainternational.eu\/en\/actualites\/an-eib-donation-to-ela\/","title":{"rendered":"An EIB donation to ELA"},"content":{"rendered":"\n\n
\n
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Fighting leukodystrophies with patients and their families<\/strong><\/p>\n

Emma Navarro, Vice-President of the EIB, the European Investment Bank, received Mr Guy Alba, founder of ELA, (European Leukodystrophy Association) and President of ELA International, at the EIB headquarters in Luxembourg on 6 May 2019.
\nThe ceremony officially marked the presentation of \u20ac26,200 from the EIB Group to support ELA in its activities.
\nThe funds raised from EIB staff, together with a grant from the EIB Institute and a donation from the EIB Management Committee, will be used to support a medical research project on a particular form of leukodystrophy called CACH (Childhood Ataxia with Central Hypomyelination) syndrome.
\nResearch and gene therapy on leukodystrophies could have a significant impact on other genetic and neurological diseases such as multiple sclerosis, Parkinson’s disease, Alzheimer’s disease and amyotrophic lateral sclerosis, thus broadening their scope.<\/p>\n

\"\"<\/p>\n

Photo: In the centre, Ms E. Navarro, Vice-President of the EIB and Mr G. Alba, President of ELA International, with M J.-L. Corti, Secretary General of ELA International, F. de Paulha Coelho, Dean of the EIB Institute, Simon Barnes, EIB Director, surrounded by EIB staff members at the “Fun 4 Purpose” initiative launched during the games organised to mark the institution’s 60th anniversary, which, as well as providing information about ELA and its activities, raised the first donations for ELA.<\/em><\/p>\n\n <\/div>\n<\/div>\n\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":6,"featured_media":22030,"parent":0,"template":"","news_categories":[97],"class_list":["post-22028","news","type-news","status-publish","has-post-thumbnail","hentry","news_categories-international-en"],"acf":[],"yoast_head":"\nAn EIB donation to ELA - ELA International<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/elainternational.eu\/en\/actualites\/an-eib-donation-to-ela\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"An EIB donation to ELA - 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