{"id":22016,"date":"2020-04-20T13:50:30","date_gmt":"2020-04-20T11:50:30","guid":{"rendered":"https:\/\/ela-international.preprod.melisagency.fr\/?post_type=news&#038;p=22016"},"modified":"2024-08-16T15:30:11","modified_gmt":"2024-08-16T13:30:11","slug":"leukodystrophies-in-the-time-of-covid-19","status":"publish","type":"news","link":"https:\/\/elainternational.eu\/en\/actualites\/leukodystrophies-in-the-time-of-covid-19\/","title":{"rendered":"Leukodystrophies in the time of Covid-19 : a double battle"},"content":{"rendered":"\n\n<div class=\"block-wrapper\">\n    <div class=\"container-content\">\n        <p>Sol\u00e8ne and Margaux are twin sisters. Margaux has leukodystrophy. She has never been able to speak or walk. In spite of Margaux\u2019s illness, Sol\u00e8ne loves spending time with and playing with her sister. Today, Margaux&#8217;s parents have to face not only their child&#8217;s illness, but also the difficult conditions of confinement: the increased anxiety due to the fragility of children with leukodystrophy, the fear of shortage of medicines, the lack of medical and paramedical care&#8230;<\/p>\n<p>&#8220;Leukodystrophy is a constant struggle for us, but what matters is to be able to look after Margaux, to do things together as a family and to make memories&#8221;.<\/p>\n<p>Leukodystrophies are rare, neurodegenerative diseases that lead to the loss of all vital functions: vision, locomotion, hearing, speech, memory.For 28 years, ELA has been supporting families, providing help, relief, and respite.<\/p>\n<p>Help ELA to continue helping families. All donations count. We need you now more than ever.<\/p>\n\n            <\/div>\n<\/div>\n\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":6,"featured_media":22018,"parent":0,"template":"","news_categories":[104],"class_list":["post-22016","news","type-news","status-publish","has-post-thumbnail","hentry","news_categories-france-en"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Leukodystrophies in the time of Covid-19 : a double battle - ELA International<\/title>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/elainternational.eu\/en\/actualites\/leukodystrophies-in-the-time-of-covid-19\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Leukodystrophies in the time of Covid-19 : a double battle - ELA International\" \/>\n<meta property=\"og:url\" content=\"https:\/\/elainternational.eu\/en\/actualites\/leukodystrophies-in-the-time-of-covid-19\/\" \/>\n<meta property=\"og:site_name\" content=\"ELA International\" \/>\n<meta property=\"article:modified_time\" content=\"2024-08-16T13:30:11+00:00\" \/>\n<meta property=\"og:image\" content=\"https:\/\/elainternational.eu\/wp-content\/uploads\/2024\/08\/corona1.jpg\" \/>\n\t<meta property=\"og:image:width\" content=\"770\" \/>\n\t<meta property=\"og:image:height\" content=\"430\" \/>\n\t<meta property=\"og:image:type\" content=\"image\/jpeg\" \/>\n<meta name=\"twitter:card\" content=\"summary_large_image\" \/>\n<script type=\"application\/ld+json\" class=\"yoast-schema-graph\">{\"@context\":\"https:\\\/\\\/schema.org\",\"@graph\":[{\"@type\":\"WebPage\",\"@id\":\"https:\\\/\\\/elainternational.eu\\\/en\\\/actualites\\\/leukodystrophies-in-the-time-of-covid-19\\\/\",\"url\":\"https:\\\/\\\/elainternational.eu\\\/en\\\/actualites\\\/leukodystrophies-in-the-time-of-covid-19\\\/\",\"name\":\"Leukodystrophies in the time of Covid-19 : a double battle - ELA International\",\"isPartOf\":{\"@id\":\"https:\\\/\\\/elainternational.eu\\\/en\\\/#website\"},\"primaryImageOfPage\":{\"@id\":\"https:\\\/\\\/elainternational.eu\\\/en\\\/actualites\\\/leukodystrophies-in-the-time-of-covid-19\\\/#primaryimage\"},\"image\":{\"@id\":\"https:\\\/\\\/elainternational.eu\\\/en\\\/actualites\\\/leukodystrophies-in-the-time-of-covid-19\\\/#primaryimage\"},\"thumbnailUrl\":\"https:\\\/\\\/elainternational.eu\\\/wp-content\\\/uploads\\\/2024\\\/08\\\/corona1.jpg\",\"datePublished\":\"2020-04-20T11:50:30+00:00\",\"dateModified\":\"2024-08-16T13:30:11+00:00\",\"breadcrumb\":{\"@id\":\"https:\\\/\\\/elainternational.eu\\\/en\\\/actualites\\\/leukodystrophies-in-the-time-of-covid-19\\\/#breadcrumb\"},\"inLanguage\":\"en-US\",\"potentialAction\":[{\"@type\":\"ReadAction\",\"target\":[\"https:\\\/\\\/elainternational.eu\\\/en\\\/actualites\\\/leukodystrophies-in-the-time-of-covid-19\\\/\"]}]},{\"@type\":\"ImageObject\",\"inLanguage\":\"en-US\",\"@id\":\"https:\\\/\\\/elainternational.eu\\\/en\\\/actualites\\\/leukodystrophies-in-the-time-of-covid-19\\\/#primaryimage\",\"url\":\"https:\\\/\\\/elainternational.eu\\\/wp-content\\\/uploads\\\/2024\\\/08\\\/corona1.jpg\",\"contentUrl\":\"https:\\\/\\\/elainternational.eu\\\/wp-content\\\/uploads\\\/2024\\\/08\\\/corona1.jpg\",\"width\":770,\"height\":430},{\"@type\":\"BreadcrumbList\",\"@id\":\"https:\\\/\\\/elainternational.eu\\\/en\\\/actualites\\\/leukodystrophies-in-the-time-of-covid-19\\\/#breadcrumb\",\"itemListElement\":[{\"@type\":\"ListItem\",\"position\":1,\"name\":\"Home\",\"item\":\"https:\\\/\\\/elainternational.eu\\\/en\\\/\"},{\"@type\":\"ListItem\",\"position\":2,\"name\":\"Leukodystrophies in the time of Covid-19 : a double battle\"}]},{\"@type\":\"WebSite\",\"@id\":\"https:\\\/\\\/elainternational.eu\\\/en\\\/#website\",\"url\":\"https:\\\/\\\/elainternational.eu\\\/en\\\/\",\"name\":\"ELA International\",\"description\":\"\",\"potentialAction\":[{\"@type\":\"SearchAction\",\"target\":{\"@type\":\"EntryPoint\",\"urlTemplate\":\"https:\\\/\\\/elainternational.eu\\\/en\\\/?s={search_term_string}\"},\"query-input\":{\"@type\":\"PropertyValueSpecification\",\"valueRequired\":true,\"valueName\":\"search_term_string\"}}],\"inLanguage\":\"en-US\"}]}<\/script>\n<!-- \/ Yoast SEO plugin. -->","yoast_head_json":{"title":"Leukodystrophies in the time of Covid-19 : a double battle - ELA International","robots":{"index":"index","follow":"follow","max-snippet":"max-snippet:-1","max-image-preview":"max-image-preview:large","max-video-preview":"max-video-preview:-1"},"canonical":"https:\/\/elainternational.eu\/en\/actualites\/leukodystrophies-in-the-time-of-covid-19\/","og_locale":"en_US","og_type":"article","og_title":"Leukodystrophies in the time of Covid-19 : a double battle - ELA International","og_url":"https:\/\/elainternational.eu\/en\/actualites\/leukodystrophies-in-the-time-of-covid-19\/","og_site_name":"ELA International","article_modified_time":"2024-08-16T13:30:11+00:00","og_image":[{"width":770,"height":430,"url":"https:\/\/elainternational.eu\/wp-content\/uploads\/2024\/08\/corona1.jpg","type":"image\/jpeg"}],"twitter_card":"summary_large_image","schema":{"@context":"https:\/\/schema.org","@graph":[{"@type":"WebPage","@id":"https:\/\/elainternational.eu\/en\/actualites\/leukodystrophies-in-the-time-of-covid-19\/","url":"https:\/\/elainternational.eu\/en\/actualites\/leukodystrophies-in-the-time-of-covid-19\/","name":"Leukodystrophies in the time of Covid-19 : a double battle - ELA International","isPartOf":{"@id":"https:\/\/elainternational.eu\/en\/#website"},"primaryImageOfPage":{"@id":"https:\/\/elainternational.eu\/en\/actualites\/leukodystrophies-in-the-time-of-covid-19\/#primaryimage"},"image":{"@id":"https:\/\/elainternational.eu\/en\/actualites\/leukodystrophies-in-the-time-of-covid-19\/#primaryimage"},"thumbnailUrl":"https:\/\/elainternational.eu\/wp-content\/uploads\/2024\/08\/corona1.jpg","datePublished":"2020-04-20T11:50:30+00:00","dateModified":"2024-08-16T13:30:11+00:00","breadcrumb":{"@id":"https:\/\/elainternational.eu\/en\/actualites\/leukodystrophies-in-the-time-of-covid-19\/#breadcrumb"},"inLanguage":"en-US","potentialAction":[{"@type":"ReadAction","target":["https:\/\/elainternational.eu\/en\/actualites\/leukodystrophies-in-the-time-of-covid-19\/"]}]},{"@type":"ImageObject","inLanguage":"en-US","@id":"https:\/\/elainternational.eu\/en\/actualites\/leukodystrophies-in-the-time-of-covid-19\/#primaryimage","url":"https:\/\/elainternational.eu\/wp-content\/uploads\/2024\/08\/corona1.jpg","contentUrl":"https:\/\/elainternational.eu\/wp-content\/uploads\/2024\/08\/corona1.jpg","width":770,"height":430},{"@type":"BreadcrumbList","@id":"https:\/\/elainternational.eu\/en\/actualites\/leukodystrophies-in-the-time-of-covid-19\/#breadcrumb","itemListElement":[{"@type":"ListItem","position":1,"name":"Home","item":"https:\/\/elainternational.eu\/en\/"},{"@type":"ListItem","position":2,"name":"Leukodystrophies in the time of Covid-19 : a double battle"}]},{"@type":"WebSite","@id":"https:\/\/elainternational.eu\/en\/#website","url":"https:\/\/elainternational.eu\/en\/","name":"ELA International","description":"","potentialAction":[{"@type":"SearchAction","target":{"@type":"EntryPoint","urlTemplate":"https:\/\/elainternational.eu\/en\/?s={search_term_string}"},"query-input":{"@type":"PropertyValueSpecification","valueRequired":true,"valueName":"search_term_string"}}],"inLanguage":"en-US"}]}},"_links":{"self":[{"href":"https:\/\/elainternational.eu\/en\/wp-json\/wp\/v2\/news\/22016","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/elainternational.eu\/en\/wp-json\/wp\/v2\/news"}],"about":[{"href":"https:\/\/elainternational.eu\/en\/wp-json\/wp\/v2\/types\/news"}],"author":[{"embeddable":true,"href":"https:\/\/elainternational.eu\/en\/wp-json\/wp\/v2\/users\/6"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/elainternational.eu\/en\/wp-json\/wp\/v2\/media\/22018"}],"wp:attachment":[{"href":"https:\/\/elainternational.eu\/en\/wp-json\/wp\/v2\/media?parent=22016"}],"wp:term":[{"taxonomy":"news_categories","embeddable":true,"href":"https:\/\/elainternational.eu\/en\/wp-json\/wp\/v2\/news_categories?post=22016"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}