{"id":20489,"date":"2022-11-08T09:29:27","date_gmt":"2022-11-08T08:29:27","guid":{"rendered":"https:\/\/ela-international.preprod.melisagency.fr\/?post_type=news&#038;p=20489"},"modified":"2024-08-08T16:31:44","modified_gmt":"2024-08-08T14:31:44","slug":"the-only-innovative-treatment-for-cald-will-not-be-available-in-europe","status":"publish","type":"news","link":"https:\/\/elainternational.eu\/en\/actualites\/the-only-innovative-treatment-for-cald-will-not-be-available-in-europe\/","title":{"rendered":"The only innovative treatment for CALD will not be available in Europe: the incomprehension of ELA International!"},"content":{"rendered":"\n\n<div class=\"block-wrapper\">\n    <div class=\"container-content\">\n        <h3>The only innovative treatment for CALD will not be available in Europe: the incomprehension of ELA International!<\/h3>\n<p>Authorised by the European Medicines Agency in 2021, Skysona, the first innovative treatment for cerebral adrenoleukodystrophy (CALD), will not be marketed in Europe. The Bluebird Bio laboratory that was to produce it is closing its doors in Europe, condemning our children. Why?<\/p>\n\n                \n\n                                        <a href=\"https:\/\/elainternational.eu\/wp-content\/uploads\/2024\/07\/EN-Lutte-contre-les-Leucodystrophies-lincomprehension-dELA-International.pdf\" \n                class=\"link-has-icon link-primary\" \n                target=\"_blank\" rel=\"noopener noreferrer\">\n                See the press release                <\/a>\n            \n                <svg width=\"17\" height=\"14\" viewBox=\"0 0 17 14\" fill=\"none\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\">\n                    <path d=\"M0 7H15M15 7L9.78261 1M15 7L9.78261 13\" stroke=\"#DF156E\" stroke-width=\"2\"><\/path>\n                <\/svg>\n\n                <span>See the press release<\/span>\n                                \n            <\/a>\n\n\n                    <\/div>\n<\/div>\n\n","protected":false},"excerpt":{"rendered":"","protected":false},"author":2,"featured_media":20471,"parent":0,"template":"","news_categories":[97],"class_list":["post-20489","news","type-news","status-publish","has-post-thumbnail","hentry","news_categories-international-en"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v28.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>The only innovative treatment for CALD will not be available in Europe: the incomprehension of ELA International! 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