ELA Italy is being revitalised thanks to a group of parents whose aim is to make it the reference association for families affected by leukodystrophy in Italy. The Association plans to organise a 5-a-side football tournament in September 2018 aimed at companies in Northern Italy. This event will bring togetherRead More →

From 22 to 25 September, ELA families met at Center Parcs at the Vossemeren estate in Lommel for a relaxing weekend. Once settled in their cottages, they were able to put their daily routine behind them for the weekend, for moments of rest, well-being, joy and surprises. This year, ourRead More →

This operation brings together several actions carried out by the family and friends of the parents of the 3-year-old little Romain who is affected by leukodystrophy. On Saturday, April 21, the 7th edition of the Reid trail was held to support struggling IEPA (Institut Provincial d’Enseignement Agronomique de la Reid)Read More →

The 11th ELA Suisse Family Weekend took place from August 10 to 12 at the Hotel Cailler in Charmey (canton of Friborg). After taking possession of their room, the families found themselves in a good mood and conviviality to share the evening meal. A meeting dedicated to parents was heldRead More →