The HEALTH BOX SWISS MADE, created by ELA Suisse, contains 20 surgical masks, 1 hydroalcoholic solution and 2 mask cases. To produce this health kit, ELA Suisse has enlisted the help of three Swiss companies sensitive to ELA’s cause: Distillerie Louis Morand & Cie for the hydroalcoholic solution, Amyna3 for
Myriam Lienhard, Yan, Arnaud and Didier Défago It was on the occasion of the 2020 Family Weekend that Myriam Lienhard (President of ELA Switzerland) presented Didier Défago (patron of ELA) with the title of Honorary Member of ELA Switzerland. From the moment he met Yan and Arnaud at the first
From 9 to 11 August 2019, the families of ELA Switzerland met at the Hotel Cailler in Charmey (canton of Fribourg) for a recreational stay.On Friday evening, the 60 or so participants were welcomed by the President of ELA Switzerland, Myriam Lienhard. Saturday morning was devoted to parents’ meeting, which
En mémoire de leur petite Noémie, emportée par la maladie de Krabbe, la famille Lordet organise depuis 2003 l’événement Noémie’s Hope Benefit Concert. Cette année, le concert a eu lieu le 4 mai 2019 au Théâtre Baarburg (canton de Zoug) avec le soutien de l’École Internationale de Zoug et Lucerne.
Providing smiles to children with a rare disease through motorsport is the goal of Rally for Smile. For its fourth edition, the initiator of the event, Pierre-André Terrettaz and his committee have chosen to support ELA Switzerland and provide families with a unique and extraordinary day. On August 25, 2018,