Avec Tony Estanguet, Zinédine Zidane, Florent Pagny et tous les ambassadeurs d’ELA, relevons cet incroyable défi : être 1 million sur la ligne de départ et faire un 1 milliard de pas pour aider les enfants malades. Prêts à mettre vos baskets ? “Mets tes baskets” invite chaque année lesRead More →

From August 4 to 6, 2023, the ELA Suisse team welcomed the association’s families to the Hôtel Cailler in Charmey (canton of Fribourg). On Saturday morning, the children had the pleasure of trying out different games in a workshop led by Béatrice Hess (honorary member of ELA). During this activity,Read More →

ELA international repeats the ELA Families/Researchers meeting virtually, an event open to the international community of patients affected by leukodystrophy. A simultaneous translation in 5 languages (German, English, Spanish, French, Italian) allowed everyone to follow the presentations live.  The videos of the meeting are available. You can review it now:Read More →

The 3rd MLD Alliance international congress on newborn screening for metachromatic leukodystrophy (MLD) was held in Florence on November 3rd and 4th 2022. It brought together some sixty clinicians, scientists, industry and patient association representatives. The 1st day, some specific workshops were organized. Scientists shared information about the ongoing newbornRead More →

The association ELA Switzerland has been selected to receive support from the operation “Everything is possible!” organised by “Radio Télévision Suisse” from December 11th to 17th 2021. The solidarity challenge in favor of ELA Switzerland consisted in the complete renovation of the meeting room of the association in its headquartersRead More →