On 28 September, ELA Spain participated in the World Leukodystrophy Day which was organised at the Fair of Associations in Coslada (city of Madrid). Throughout the day, ELA Spain staff organised a stand next to a metro exit – an ideal place to raise awareness of leukodystrophies among passers-by. During the day, politicians approached the stand and the staff were able to inform them of the difficulties, put forward requests and needs to make leukodystrophies as widely known as possible.

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