Leukodystrophies concerned: All leukodystrophies and in particular Pelizaeus-Merzbacher disease (PMD), hypomyelinating leukodystrophies, CACH syndrome, megalencephalic cystic leukodystrophy (MLC), Alexander disease and cavitary leukodystrophies, Aicardi-Gystrophic syndrome, Aicardi-Gystrophy B and dominant leukodystrophies.
Hôpital Robert-Debré
Groupement Hospitalier Universitaire Nord
48, boulevard Sérurier
75019 Paris, France
Phone contact :
Monday, Tuesday, Wednesday (8 am-8pm): 01 40 03 40 20
from Thursday to Sunday included: 04 73 71 53 05
HOTLINE: 06 31 73 93 52
Fax: 01 40 03 47 74
E-mail : marie-louise.vendeville@rdb.aphp.fr
Coordinator: Pr Odile Boespflug-Tanguy
Neuropediatricians: Pr Odile Boespflug-Tanguy, Dr Sandrine Passemard
Paramedical coordinator: Marie Louise Vendeville
Secretary: Christelle Lanista
Nursery manager: Véronique Maestracci
Neuropsychologists: Jessica Save, Marion Barget
Social worker: Sandra Lecerf
Physiotherapy: David Marteil, Emilie Soulier, Christine Hamel
Opthalmology: Dr Eliane Delouvrier, Dr Hélène Dallens
Orthopsy: Marie Solé
Neurophysiology: Dr Catherine Delanoe, Dr Tarif Masri
Imaging: Dr Monique Elmaleh, Dr Bogdana Tilea
ENT: Prof. Thierry Van den Abbeele
